![]() He will have two more rounds before we assess whether or not he’s seeing any pain relief and if we should continue. He hasn’t had any pain relief yet, but his doctor wasn’t expecting anything this early. I try and tell him that people aren’t being nosy but are genuinely asking so they can maybe offer a suggestion or even just a simple prayer but at 16 years old with this condition, it’s just hard so I try and look at it from his point of view.īut, he had his first IVIg treatment a couple of weeks ago. Jump to this You're so sweet for asking about him! I try and respect his privacy by not mentioning his name Since he’s so private about this entire situation. Our experience was with the trial for a stimulator and not a permanent one, so I’m not sure how similar/different the two would be from each other. Ours was wonderful and was devastated when it didn’t provide any pain relief for my son. If you do a trial, you will have a representative from the drug company who will do the “adjustments” for you and make sure everything is working properly. I think the worst part was how irritated his skin was from all the tape/bandages that were there to keep the leads and device in place. He said it was uncomfortable but not overly painful to have the electrical leads removed. Since the DRG didn’t work for him, he just had an office appt to have the “leads pulled”. Had the stimulator provided some pain relief for him, they would have done another minor surgery to insert a small device just under the skin and it would be controlled by a phone. It was a pretty minor surgery to implant the leads and my son was able to go home that same day. When you do a trial, they only implant the electrical leads into your spine and the actual device is externally taped to your back. Hope this son did a trial for 7 days of a DRG stimulator. ![]() ![]() Son did a trial for 7 days of a DRG stimulator. ![]()
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